In 2012 I was awarded a scholarship to blog live during the Health 2.0 conference in San Francisco. The series of blogs you see are from those conference days.
Panel – Moderated by Amy Tenderich from DiabetesMine Which is a diabetes newspaper read by patients and the medical industry
Also connected to DiabeticConnect an online community
This session is about health consumer empowerment
The conversation has moved on we have these resources but now how do we legitimize them
Stanfords Medx conference recently looked at this area
How can we can integrate these health apps into communities and ensure they are mobile these are some of the areas we need to look at
the biggest innovation for patients is online patient communities not just apps
Eric Peacock MyHealthTeams
Org creates social networks for specific chronic conditions an example is MyAutismTeam and now debuts MyBCTeam for women facing breast cancer
This is combination Facebook Pinterest and Yelp.
Overview of the community:
it starts with finding women just like you they must have same circumstance
1831 women are now in the site
The functionality looks like face books wall you can add a like or even a hug to people’s comments
Each person has a story ie Ida’s Story you can also see her treatment path thT she has pursued and see her team which are all the people on the site but also her providers in healthcare this is a yelp style listing of the medical professionals
Women also share lots of photos so a Pinterest board has been added
the Q&A section is very well used by the women.
You need to be logged in to be part of the site and there is ability to share more private messages
There is no advertising on the site
60 percent of women use real name and real photos
Alex Siedlecki Audex Health
Care verge platform
Ability for users to set goals such as walking or sleeping etc
There is ability to set up group goals and activities
personalization is critical as it makes it relevant to them
There are two tracking methods either self reporting or using a device
there are social elements integrated into the platform
Target user very broad but there is a
Heavy skew 40 to 50 year old women
The user can also go into a health information community where they can find the right information for them
A subscription based model and they work with providers such as insurance companies
Experts are active on the site to give information to the user
They can be nurses or personal trainers and subject matter expert
Sean Mehra HealthTap
This site Has 15k physicians and you can ask a question for free
You can discover doctors that are ranked by other physicians
Demo shown looking at user profile with women posting question about a rash doctors responded to her rapidly she then followed up with photo from her phone.
Users can search for local gps on the site as well as read current research papers
it’s avail on iPad on the web also iPhone and android
totally free service
Doctors have range incentives to participate such as new patients they want to be seen as thought leaders among their peers
validation from peers and patient is also key
15k doctors go through manual review process to be listed on the site
Doctors stay away from advice and prescription diagnosis to avoid legal issues
The business model – you can pay for a private conversation with a doctor ie online consult with gp of their choice
Diabetic Connect Community
Patients that connect socially tend to have better outcomes
Usage data shows that newly diagnosed with chronic condition want connect with the peers
The discussion forum is highly active
When you look at users you can see how engaged they are or how influential they are in the community
gamification elements such as badges are included in the community
Nice functionality to have range of health profiles make it easy to identify similar people in the site
Ability to track sugarsnetc online and people can see this information if you allow them to
All conversations are threaded not real time chats
Advertising is done on an opt in basis from marketing partners
There are alias based privacy models
The business model some display advertising, social walls that pharmas can use and newsletter
there are 700k users on the site currently
Panel Questions
People search on web to their specific needs but they recognize that comorbidity is an issue for many patients and many on then panel are looking at that area today
There is an issue with of gps not necessarily recommending these patient sites – the healthcare establishment need to make them part of the system many of the key health services are starting to share these sites with patients.
Panel questions
Sean Mehra HealthTap
Sean Mehra HealthTap
Alex Siedlecki Audex Health